How I work out while battling chronic illnesses

I recently wrote a column titled “How I’m reflecting on 2024 while preparing for the new year.” In it, I shared that I want to work out more consistently in 2025, exercising three or four days a week. That made me think about my answer to the question, “How do you work out while battling chronic illnesses?”

While everyone’s answer is different, it’s an important topic that should be discussed. We all know that exercise can lead to positive physical changes, but it can have mental benefits, too.

As HelpGuide.org notes, “People who exercise regularly tend to do so because it gives them an enormous sense of well-being. They feel more energetic throughout the day, sleep better at night, have sharper memories, and feel more relaxed and positive about themselves and their lives. And it’s also a powerful medicine for many common mental health challenges.”

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June 19, 2024 by Erin Fortin

An increase in my physical abilities is good motivation to exercise

Personally, I work out to feel good about my body and because it puts me in a positive mental state. Before I was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) and aplastic anemia, I was very active, participating in cheerleading, soccer, dance line, and band. I was used to moving my body and having a packed schedule.

After my diagnoses, I had to find other ways to move my body and maintain my health and strength. But I struggled to find the physical and mental capacity to exercise. I’d always pushed myself hard, but with my rare blood disorders, I knew I had to learn to take it slow.

Learning how to work out with PNH

Taking it slow in the gym can mean so many things. It could mean doing more reps with a lighter weight, walking instead of jogging or running, or exercising for 30 minutes instead of an hour. My workouts look different every time I go to the gym, as some days I feel stronger than others. That is completely normal, even for people who are generally healthy.

Still, to be more consistent about working out, I need to walk into the gym with a plan. This helps me feel more motivated. I downloaded an app called Ladder onto my phone, which made it easy for me to create a workout regimen. Ladder offers many different fitness instructors and routines, allowing me to find someone who fits my needs.

In addition, I hydrate, hydrate, and hydrate, and make sure to nourish my body. Proper nutrition allows me to get a good workout. I’ve learned I need to work on my internal health as well as my external appearance. For me, that means eating healthy foods, consuming enough protein, and drinking a lot of water. I set these goals for myself year-round, as they can be easier said than done. I can feel my strength fluctuate depending on how I fuel my body.

Working out gives me the mental boost I need to go about life with chronic illnesses. I hope this column inspires you to get up and get moving in whatever way you can. With the new year approaching, it’s a great time to consider positive changes you can make in 2025.

Note: PNH News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of PNH News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to paroxysmal nocturnal hemoglobinuria.

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