There are days when speaking up feels like the hardest thing I will do. Living with paroxysmal nocturnal hemoglobinuria (PNH) means balancing doctor appointments, treatments, fatigue, and the uncertainty that comes with a rare diagnosis. On those days, it would be easy to stay quiet. But I’ve learned…
Discussion
Jasper Therapeutics has announced its acquisition of Kira Pharmaceuticals in a deal that will provide new resources and expertise to help advance the late-stage clinical development of KP104, a treatment candidate for paroxysmal nocturnal hemoglobinuria (PNH), as well as other experimental therapies involving the immune system. For…
Discussion
While people with paroxysmal nocturnal hemoglobinuria (PNH) have access to a range of approved medications that effectively control the rare acquired disease, their administration can be time-consuming and may disrupt patients’ work, travel, daily activities, and family life, creating a large time burden. That’s according to a new study…
Discussion
One of the biggest lessons that paroxysmal nocturnal hemoglobinuria (PNH) has taught me wasn’t about medicine or lab results. It was about rest. For years, I viewed rest as something you earned. If I finished my work, cleaned the house, ran errands, and took care of everyone else, then…
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