Seven people with paroxysmal nocturnal hemoglobinuria (PNH) in Kenya went months to years before receiving a diagnosis, according to a case series highlighting the challenges of recognizing and treating the rare, acquired blood disorder in resource-limited settings. All seven had recurrent anemia, or a shortage of healthy red blood…
Discussion
Anemia, or a shortage of healthy red blood cells, may have a greater impact on quality of life than ongoing red blood cell destruction — the hallmark of paroxysmal nocturnal hemoglobinuria (PNH) — despite treatment in people with the rare acquired disease, a real-world study suggests. Individuals with significant…
Discussion
Last in a series. Read part one. In my last column, I discussed when it might be time to consider a bone marrow transplant for paroxysmal nocturnal hemoglobinuria (PNH). But considering it and actually deciding to move forward are two very different things. If that conversation ever becomes…
Discussion
First in a series. Living with paroxysmal nocturnal hemoglobinuria (PNH) has taught me that some of the hardest decisions aren’t the ones we have to make today — they’re the ones we know we may have to face someday. For me, one of those decisions is the possibility of…
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