Early recognition of paroxysmal nocturnal hemoglobinuria (PNH) in a 39-year-old woman with unexplained anemia led to treatment starting before any blood clot, or thrombotic, complications were detected, according to a case report from Portugal. The woman sought emergency care multiple times after several weeks of worsening fatigue and recurrent…
Discussion
Living with paroxysmal nocturnal hemoglobinuria (PNH) has a way of teaching you to hold two very different emotions at the same time: gratitude for how far medicine has come, and hope for how much further it still needs to go. Since my diagnosis in 2017, I’ve learned that…
Improved access to standard-of-care treatments could significantly improve outcomes for people with paroxysmal nocturnal hemoglobinuria (PNH) living in South India, a study found. The researchers said poor outcomes, including frequent complications, repeated hospitalizations, and increased mortality, were largely driven by greater reliance on supportive care in the region. “Supportive…
Discussion
Now that we’re settled into 2026, I want to share some intentions I’m setting rather than goals. Living with paroxysmal nocturnal hemoglobinuria (PNH) has taught me that life doesn’t always move in straight lines. Sometimes it pauses. Sometimes it forces you to pivot. And sometimes it asks you to…
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