There’s a common belief that giving back to your community requires endless energy, perfect health, or plenty of free time. The truth is, some of the most meaningful acts of kindness come from people who are facing their own challenges every single day, just like I am with paroxysmal…
Discussion
There are days when speaking up feels like the hardest thing I will do. Living with paroxysmal nocturnal hemoglobinuria (PNH) means balancing doctor appointments, treatments, fatigue, and the uncertainty that comes with a rare diagnosis. On those days, it would be easy to stay quiet. But I’ve learned…
Discussion
Jasper Therapeutics has announced its acquisition of Kira Pharmaceuticals in a deal that will provide new resources and expertise to help advance the late-stage clinical development of KP104, a treatment candidate for paroxysmal nocturnal hemoglobinuria (PNH), as well as other experimental therapies involving the immune system. For…
Discussion
While people with paroxysmal nocturnal hemoglobinuria (PNH) have access to a range of approved medications that effectively control the rare acquired disease, their administration can be time-consuming and may disrupt patients’ work, travel, daily activities, and family life, creating a large time burden. That’s according to a new study…
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