One of the hardest lessons that comes with living with paroxysmal nocturnal hemoglobinuria (PNH) is learning that control doesn’t always look the way you thought it would. Before a PNH diagnosis, control can feel straightforward. You plan your days, set your goals, and expect your body to cooperate.
The approved dosing regimens of Voydeya (danicopan) are supported for adults with paroxysmal nocturnal hemoglobinuria (PNH) receiving standard therapies and generally do not appear to require adjustment based on patient characteristics or food intake, according to a new analysis of clinical trial data. Voydeya is an oral medication…
Discussion
As a patient, when you first hear the words “paroxysmal nocturnal hemoglobinuria” (PNH), life can suddenly feel very small and uncertain. It’s not only because of the diagnosis itself — it’s also the realization that most people have never heard of the condition. Explaining PNH becomes part of your…
Blood markers designed to measure activation of the complement system, a part of the immune system involved in paroxysmal nocturnal hemoglobinuria (PNH), may not reliably reflect disease activity or red blood cell destruction in patients receiving complement-blocking therapies, a new study suggests. The researchers found that although these complement…
Get regular updates delivered to your inbox.
