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Featured Articles
January 13, 2026 by Shaquilla Gordon

Getting back to my routine after the holidays as a PNH patient

The holidays always create a pause, a soft space filled with food, family, laughter, and moments where illness politely steps aside, allowing joy to take the lead. But once the decorations come down and the calendar flips, life gently but firmly reminds me that we’re back to regular programming.

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A pregnant woman is shown walking while holding her abdomen.
January 12, 2026 by Michela Luciano, PhD

Baby born healthy after exposure to Ultomiris for mother’s PNH

A healthy baby was born after exposure to Ultomiris (ravulizumab-cwvz) during the first trimester of pregnancy in a 25-year-old woman with paroxysmal nocturnal hemoglobinuria (PNH), according to a new case report. The woman was on Ultomiris when she was found to be pregnant. Because little is known about…

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January 5, 2026 by Margarida Maia, PhD

Top 5 PNH stories of 2025

In 2025, PNH News delivered timely coverage of the latest research developments and advances in care related to paroxysmal nocturnal hemoglobinuria (PNH). To close the year, we’ve compiled the five most-read stories. As we move into 2026, we remain committed to supporting the PNH community with clear reporting…

An illustration shows a close-up view of red and white blood cells.
December 22, 2025 by Steve Bryson PhD

Rare case of PNH plus lymphoma highlights management challenges

A rare case of paroxysmal nocturnal hemoglobinuria (PNH) coexisting with diffuse large B-cell lymphoma (DLBCL), a type of blood cancer, was chronicled in a new report that sought to elucidate some of the challenges that can come with the management of the acquired blood disorder co-occurring with this cancer.

Main banner for Shaquilla Gordon's column

Featured ColumnFinding the strength to rise again after a scary night in the ER

There may be moments in life with PNH when fear takes the wheel, but there’s also strength in rising again, says columnist Shaquilla Gordon.

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Living Fully With PNH: One Patient’s Journey

Perspectives

  1. Main banner for Shaquilla Gordon's column
    January 13, 2026 by Shaquilla Gordon

    Getting back to my routine after the holidays as a PNH patient

  2. Main banner for Shaquilla Gordon's column
    December 2, 2025 by Shaquilla Gordon

    Finding the strength to rise again after a scary night in the ER

  3. Main banner for Shaquilla Gordon's column
    November 25, 2025 by Shaquilla Gordon

    I give thanks to my PNH support system, my family, my fortress

  4. Main banner for Shaquilla Gordon's column
    November 11, 2025 by Shaquilla Gordon

    Family planning can be more complicated with a PNH diagnosis

  5. Main banner for Shaquilla Gordon's column
    November 4, 2025 by Shaquilla Gordon

    Living with the fear of aplastic anemia while managing PNH

  6. Main banner for Shaquilla Gordon's column
    October 21, 2025 by Shaquilla Gordon

    Facing the ‘what-ifs’ of PNH complications

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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