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Featured Articles
October 21, 2025 by Shaquilla Gordon

Facing the ‘what-ifs’ of PNH complications

Living with paroxysmal nocturnal hemoglobinuria (PNH) isn’t just about managing what’s happening today; it’s also about facing what could happen tomorrow. As much as I try to live in the moment, I’d be lying if I said the potential complications of PNH don’t cross my mind. The truth is,…

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October 20, 2025 by Andrea Lobo, PhD

Novo Nordisk, Omeros agree to zaltenibart deal for PNH treatment

Novo Nordisk has entered a license agreement with Omeros for the development and commercialization of zaltenibart (OMS906), an experimental treatment for paroxysmal nocturnal hemoglobinuria (PNH). The deal, expected to be close by year-end 2025, will give Novo Nordisk exclusive global rights for zaltenibart in all indications. Once finalized,…

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October 13, 2025 by Marisa Wexler MS

Most immune reactions after PNH treatment switch are manageable

People switching between treatments for paroxysmal nocturnal hemoglobinuria (PNH) may develop transient immune complex reactions (TICRs) — a type of inflammatory reaction — but these are usually not serious and manageable, a new analysis of more than 200 people finds. The analysis covered people who switched from Soliris…

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October 7, 2025 by Shaquilla Gordon

Finding the right doctor to partner with in my PNH care

Living with paroxysmal nocturnal hemoglobinuria (PNH) since 2017 has taught me that finding the right physician is as important as the treatment itself. Because PNH is rare, I need a doctor who is more than a medical expert — they must also be a partner in this…

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Featured ColumnWe shouldn’t have to battle with insurance to access PNH care

Columnist Shaquilla Gordon often has to fight with insurance to cover her PNH treatment. It shouldn’t be so hard to access care, she says.

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Living Fully With PNH: One Patient’s Journey

Perspectives

  1. Main banner for Shaquilla Gordon's column
    October 21, 2025 by Shaquilla Gordon

    Facing the ‘what-ifs’ of PNH complications

  2. Main banner for Shaquilla Gordon's column
    October 7, 2025 by Shaquilla Gordon

    Finding the right doctor to partner with in my PNH care

  3. Main banner for Shaquilla Gordon's column
    September 30, 2025 by Shaquilla Gordon

    We shouldn’t have to battle with insurance to access PNH care

  4. Main banner for Shaquilla Gordon's column
    September 9, 2025 by Shaquilla Gordon

    Staying positive during a PNH flare isn’t easy, but it’s worth it

  5. Main banner for Shaquilla Gordon's column
    August 19, 2025 by Shaquilla Gordon

    To the newly diagnosed: Welcome to the club no one asks to join

  6. Main banner for Shaquilla Gordon's column
    August 5, 2025 by Shaquilla Gordon

    I’m wiser today about processing the emotional roller coaster of PNH

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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