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Featured Articles
May 23, 2025 by Brandi Lewis

5 things I wish I knew after my PNH diagnosis

You never think you’ll face health issues until you do. I wasn’t at all prepared for my diagnosis of paroxysmal nocturnal hemoglobinuria (PNH) and aplastic anemia, and the news filled me with worry. I was thrust into a world of unknowns and forced to learn about two rare…

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May 20, 2025 by Shaquilla Gordon

Feeding my fight: How I eat to live well with PNH

When I was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) in 2017, food was the last thing on my mind. I was overwhelmed by appointments, blood work, and adjusting to my “new normal.” But over time, I realized that what I put into my body played a huge role in…

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May 19, 2025 by Margarida Maia, PhD

Soliris may boost pregnancy outcomes for women with PNH

Pregnant women with paroxysmal nocturnal hemoglobinuria (PNH) who receive Soliris (eculizumab) have higher chances of their babies surviving compared with those who don’t, with fewer miscarriages before 24 weeks, a meta-analysis study has found. Biosimilars of Soliris are also available. “Eculizumab appears to be safe and benefits pregnant women with…

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May 16, 2025 by Brandi Lewis

How I support other PNH and aplastic anemia patients

Living with rare blood disorders can bring a sense of loneliness. Of the billions of people on Earth, only a handful truly understand what I’m going through. In addition, trying to find a good support team and helpful health information can be daunting and stressful. With my diagnoses of…

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Featured ColumnWhat does PNH brain fog feel like?

What does brain fog feel like? Columnist Shaquilla Gordon describes it as a disorienting, frustrating haze that makes everything hard.

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Click the link below to find all the latest news related to PNH.

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Perspectives

  1. An illustration of a woman riding a roller coaster winding through a forest, as the banner image for
    May 23, 2025 by Brandi Lewis

    5 things I wish I knew after my PNH diagnosis

  2. Main banner for Shaquilla Gordon's column
    May 20, 2025 by Shaquilla Gordon

    Feeding my fight: How I eat to live well with PNH

  3. An illustration of a woman riding a roller coaster winding through a forest, as the banner image for
    May 16, 2025 by Brandi Lewis

    How I support other PNH and aplastic anemia patients

  4. Main banner for Shaquilla Gordon's column
    May 13, 2025 by Shaquilla Gordon

    When the storm clears: A day in my life without PNH symptoms

  5. An illustration of a woman riding a roller coaster winding through a forest, as the banner image for
    May 9, 2025 by Brandi Lewis

    How I navigate the symptoms of PNH and aplastic anemia

  6. Main banner for Shaquilla Gordon's column
    May 6, 2025 by Shaquilla Gordon

    What does PNH brain fog feel like?

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