As the holidays approach, I feel an especially deep pull toward gratitude. Living with paroxysmal nocturnal hemoglobinuria (PNH) has taught me many things — resilience, patience, courage — but nothing has been more powerful than the lesson of love. Not the easy, everyday kind, but the kind that shows…
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Doctors for the first time used PiaSky (crovalimab-akkz) to control paroxysmal nocturnal hemoglobinuria (PNH) in a woman with the autoimmune disease systemic lupus erythematosus (SLE), according to a case study. The study’s authors said the case is the seventh documented instance of PNH occurring in someone with…
A case report highlights the steps necessary to prevent dangerous clots and minimize bleeding when performing a cesarean section on someone who has co-occurring paroxysmal nocturnal hemoglobinuria (PNH) and aplastic anemia, a condition in which the bone marrow fails to produce enough blood cells. Researchers in Greece described the…
When I was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) in 2017, family planning wasn’t exactly the first thing on my mind. I was still trying to wrap my head around what this rare disease even meant for my life. But as time went on and the dust of the…
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