When people picture someone with an illness or disability, they often visualize a wheelchair, medical device, or some other visible sign that the person is facing health challenges. But there’s not always an external indicator that someone is living with an illness. As a Talkspace article explains, “An invisible…
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Living with paroxysmal nocturnal hemoglobinuria (PNH) has changed so many aspects of my life, from how I care for my health to how I advocate for myself in the doctor’s office. But one of the most deeply personal shifts has been how I manage my relationships — with my…
Fabhalta (iptacopan) is now available in Canada, according to its developer Novartis, which noted that it’s the first — and so far, the only — approved oral treatment that can be used on its own for adults with paroxysmal nocturnal hemoglobinuria (PNH) who have hemolytic anemia, or…
It takes courage to be vulnerable, especially when sharing your story with strangers on the internet. After being diagnosed with aplastic anemia and paroxysmal nocturnal hemoglobinuria (PNH), I’ve seen the impact storytelling has had on my life. We’ve all experienced moments that made a monumental impression on us.
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