Fatiguing but Succeeding - Erin Fortin

For much of my life, I had a bad case of “white coat syndrome,” which, according to the Cleveland Clinic, is when your blood pressure rises because of “the anxiety of being around…

Last in a series. Read parts one, two, and three. The months following the delivery of my daughter, Joelle, were some of the most wonderful months of my life. But they…

Third in a series. Read parts one and two. On May 8, 2022 — Mother’s Day — I arrived at the hospital for labor induction. At that point, my platelet count was…

Second in a series. Read part one. Being pregnant was one of the most beautiful experiences of my life. The uncertainty of my health due to paroxysmal nocturnal hemoglobinuria (PNH) made the…

First in a series. Receiving a diagnosis of paroxysmal nocturnal hemoglobinuria (PNH) in 2019 left me confused, scared, and desperate for more information. As my mom checked me out at the medical office…

In everyday conversations with family and friends, I’ll sometimes hear someone comment that a person they know has either strep throat or the flu. This immediately puts me in a defensive mode. My brain…

My social life has suffered as I’ve lived with my rare disease, paroxysmal nocturnal hemoglobinuria (PNH). Many times my symptoms have held me back, keeping me from making plans because my health…

Living through a pandemic was certainly not on my bucket list, especially given my rare blood disorder, paroxysmal nocturnal hemoglobinuria (PNH). Learning immunocompromised people are at a high risk for the COVID-19 virus…

Shortly after being diagnosed with a rare blood disorder, paroxysmal nocturnal hemoglobinuria (PNH), I began to experience attacks of stomach pain. They’d originate in my lower ribs and work their way down…

In 2019, I was diagnosed with my rare blood disorder, paroxysmal nocturnal hemoglobinuria (PNH). I was in New York City to see a specialist and remember looking out the 23rd-floor window, worrying…