Fatiguing but Succeeding - Erin Fortin

Fear is something I surprisingly don’t experience much when it comes to living with paroxysmal nocturnal hemoglobinuria (PNH). After I’ve been through multiple battles and come out with victories on the other side,…

What do you think of when you hear the words “one in a million”? Do you think of the chances of winning the lottery and how those odds seem almost impossible, making you sigh…

Note: This column describes the author’s own experiences with Ultomiris (ravulizumab-cwvz). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Excited, relieved, and hopeful: These…

When I drive, the car is like a sold-out concert at Madison Square Garden in New York City. I love singing with a deep-rooted passion along with songs that either have meaningful lyrics or…

When I was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH), I was intimidated by the idea of being treated with an intravenous medication and having to strictly follow an infusion schedule. I…

As a patient with paroxysmal nocturnal hemoglobinuria (PNH), I experience a variety of symptoms every day. In a previous column, I discussed my most common symptoms, such as fatigue, headaches, and…

The first months of the year are typically filled with New Year’s resolutions, early winter sunsets — and the sounds of coughing, sneezing, and nasal congestion. Every year, it seems like I or someone…

One of my favorite reality TV shows, “Selling Sunset” on Netflix, is about a real estate firm that sells luxury homes for millions of dollars. The agents celebrate each sale by ringing…

Comforting people when they’re going through difficult times or looking for support is hard to navigate. I’ve been on both sides of this situation, especially since I was diagnosed with paroxysmal nocturnal hemoglobinuria…

One of my favorite hobbies is watching competitive reality television shows. “Survivor” and “The Amazing Race,” both on CBS, are two of my guilty pleasures to pass the time. I’ve been a…