Working as a healthy person is hard, but add a chronic illness to your 9-to-5 job, and it becomes even tougher. I have worked in corporate America for seven years. Throughout my career, I’ve endured stressful days when the company was short-staffed and I was the only person on the…
Columns
“Why me?” This is the question many patients ask themselves after being diagnosed with an illness. My first “why me?” moment occurred in 2009 at age 19. Between living in sorority dorms, studying in the library, and eating and socializing in the café, college life filled my days. I had…
Recent Posts
- New questionnaire assessing fatigue ‘reliable and valid’ for adults with PNH
- Progress in research and treatments is a reason for holding on to hope
- New gene study highlights clot risk factor in people living with PNH
- Becoming a patient advocate gave me purpose in the fight against PNH
- Study finds Ultomiris safe as PNH treatment during pregnancy