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I’m from Long Island, New York, where couples choose either an over-the-top wedding or a down payment for a house; we chose a wedding. As in the movie “My Big Fat Greek Wedding,” my husband, John, and I had a day that required immense planning, many moving parts,…

I answered the doctor’s call with, “Hello, this is Brandi.” On the other end, my doctor paused and then delivered the news: “Your results came back, and they are positive for paroxysmal nocturnal hemoglobinuria” (PNH). I didn’t know what to think. Just that week, I’d been diagnosed…

Going to the doctor for a wellness check or discussions about my health was unheard of during the first 24 years of my life. My needle phobia played mind games on me, tricking me into believing that the only reason for invasive blood draws, vaccines, and IVs was to cause…

When asked how I’m feeling, I often force a smile, nod my head, and say, “Good! How are you?” But what I truly want to say is, “PNH is kicking my butt! I am feeling it mentally, physically, and emotionally.” When I’m in the midst of fighting paroxysmal nocturnal…

Working as a healthy person is hard, but add a chronic illness to your 9-to-5 job, and it becomes even tougher. I have worked in corporate America for seven years. Throughout my career, I’ve endured stressful days when the company was short-staffed and I was the only person on the…

“Why me?” This is the question many patients ask themselves after being diagnosed with an illness. My first “why me?” moment occurred in 2009 at age 19. Between living in sorority dorms, studying in the library, and eating and socializing in the café, college life filled my days. I had…