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Featured Articles
July 4, 2025 by Brandi Lewis

Looking back on how my health journey affected my siblings

When you’re diagnosed with a chronic illness, no one tells you how it will affect other members of the family, particularly siblings. I grew up in a close-knit family, and my mom and dad raised three strong, morally driven women who are resilient enough to face life’s challenges. But that…

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July 1, 2025 by Shaquilla Gordon

To travel with a chronic illness, pack caution and carry courage

Travel has always fed my soul. There’s something magical about exploring a new city, tasting different foods, or just watching the sunrise from someplace unfamiliar. But since I was diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) in 2017, traveling has taken on a whole new meaning — it’s no longer…

The high cost of prescription drugs breaks the piggy bank in this illustration.
June 30, 2025 by Margarida Maia, PhD

As number of PNH cases rise in Italy, so does treatment cost: Study

Paroxysmal nocturnal hemoglobinuria (PNH) is being diagnosed more frequently in Italy, and while treatment with complement inhibitors can be effective, it carries a high yearly cost of over €133,000 (about $155,000) per patient, mostly due to medication expenses. According to a study, every fourth patient received treatment…

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June 24, 2025 by Shaquilla Gordon

Why I no longer feel guilty about seeking a medical second opinion

Living with paroxysmal nocturnal hemoglobinuria (PNH) has taught me many things — but one lesson I didn’t expect to learn was how complicated it can feel to ask for a medical second opinion. Let’s be real: There’s a stigma around it. Whether we say it…

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Featured ColumnLiving with invisible illness builds strength that others can’t see

Columnist Shaquilla Gordon shares what it’s like to function every day with an invisible illness like PNH. Most people have no idea.

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Perspectives

  1. An illustration of a woman riding a roller coaster winding through a forest, as the banner image for
    July 4, 2025 by Brandi Lewis

    Looking back on how my health journey affected my siblings

  2. Main banner for Shaquilla Gordon's column
    July 1, 2025 by Shaquilla Gordon

    To travel with a chronic illness, pack caution and carry courage

  3. Main banner for Shaquilla Gordon's column
    June 24, 2025 by Shaquilla Gordon

    Why I no longer feel guilty about seeking a medical second opinion

  4. An illustration of a woman riding a roller coaster winding through a forest, as the banner image for
    June 20, 2025 by Brandi Lewis

    How the power of choice helped me fight my chronic illnesses

  5. Main banner for Shaquilla Gordon's column
    June 17, 2025 by Shaquilla Gordon

    Living with invisible illness builds strength that others can’t see

  6. Main banner for Shaquilla Gordon's column
    June 10, 2025 by Shaquilla Gordon

    The power of shared decision-making in patient care

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