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Featured Articles
January 27, 2026 by Shaquilla Gordon

This year, I’m choosing strength, balance, and purpose

Now that we’re settled into 2026, I want to share some intentions I’m setting rather than goals. Living with paroxysmal nocturnal hemoglobinuria (PNH) has taught me that life doesn’t always move in straight lines. Sometimes it pauses. Sometimes it forces you to pivot. And sometimes it asks you to…

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An illustration shows a close-up view of red and white blood cells.
January 26, 2026 by Marisa Wexler MS

Abnormal NK cells may disrupt immune activity in PNH: Study

People with paroxysmal nocturnal hemoglobinuria (PNH) have abnormalities in infection-fighting immune cells called natural killer (NK) cells, a study showed, shedding light on how this blood cell disorder may dysregulate the immune system. The study, “Role of NK cells in immune escape in patients with classical…

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January 20, 2026 by Shaquilla Gordon

When flu type A tests a life already defined by PNH

After the holidays, most of us expect to return to our routine: familiar rhythms, predictable appointments, and the steady hum of normal life. But when influenza type A hit me hard recently, that return felt less like a reset and more like a collision of challenges — one that…

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January 13, 2026 by Shaquilla Gordon

Getting back to my routine after the holidays as a PNH patient

The holidays always create a pause, a soft space filled with food, family, laughter, and moments where illness politely steps aside, allowing joy to take the lead. But once the decorations come down and the calendar flips, life gently but firmly reminds me that we’re back to regular programming.

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Featured ColumnFinding the strength to rise again after a scary night in the ER

There may be moments in life with PNH when fear takes the wheel, but there’s also strength in rising again, says columnist Shaquilla Gordon.

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‘Why Me’ to ‘What’s Next:’ Garrett’s Journey With PNH

Perspectives

  1. Main banner for Shaquilla Gordon's column
    January 27, 2026 by Shaquilla Gordon

    This year, I’m choosing strength, balance, and purpose

  2. Main banner for Shaquilla Gordon's column
    January 20, 2026 by Shaquilla Gordon

    When flu type A tests a life already defined by PNH

  3. Main banner for Shaquilla Gordon's column
    January 13, 2026 by Shaquilla Gordon

    Getting back to my routine after the holidays as a PNH patient

  4. Main banner for Shaquilla Gordon's column
    December 2, 2025 by Shaquilla Gordon

    Finding the strength to rise again after a scary night in the ER

  5. Main banner for Shaquilla Gordon's column
    November 25, 2025 by Shaquilla Gordon

    I give thanks to my PNH support system, my family, my fortress

  6. Main banner for Shaquilla Gordon's column
    November 11, 2025 by Shaquilla Gordon

    Family planning can be more complicated with a PNH diagnosis

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